tag:blogger.com,1999:blog-32529371.post116174538120706536..comments2024-03-20T01:42:15.078-06:00Comments on Adrienne Graves - Life with Intention: Adriennehttp://www.blogger.com/profile/04101665341916407243noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-32529371.post-1161842882288484632006-10-26T00:08:00.000-06:002006-10-26T00:08:00.000-06:00Ade and Jason...you guys are such amazing parents....Ade and Jason...you guys are such amazing parents. That little guy is so loved and so blessed to have parents like you. In the midst of the pain you still manage to bring life and joy to his world. We are praying for your stength, endurance and healing. Much love...Mauri and RobAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-32529371.post-1161838196698998792006-10-25T22:49:00.000-06:002006-10-25T22:49:00.000-06:00definitely praying for you guys and the latest (no...definitely praying for you guys and the latest (not so latest) developments.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-32529371.post-1161832640856020622006-10-25T21:17:00.000-06:002006-10-25T21:17:00.000-06:00Jason and Ade,Much love and prayers for all of you...Jason and Ade,<BR/>Much love and prayers for all of you. We also pray for strength and wisdom. We love you guys so much.<BR/>KimKimhttps://www.blogger.com/profile/13895932087034363151noreply@blogger.comtag:blogger.com,1999:blog-32529371.post-1161810390218243382006-10-25T15:06:00.000-06:002006-10-25T15:06:00.000-06:00You may want to check into ALD (Adrenoleukodystrop...You may want to check into ALD (Adrenoleukodystrophy). "ALD accumulates high levels of saturated, very long chain fatty acids (VLCFA) in the brain and adrenal cortex because they do not produce the enzyme that breaks down these fatty acids in the normal manner." This disease is very very rare and found most commonly in young boys some of the symptoms include retinal degeneration, hypotonia both of which I am almost positive Noah has had. I hope this leads you somewhere! =)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-32529371.post-1161800614100571502006-10-25T12:23:00.000-06:002006-10-25T12:23:00.000-06:00You guys continue to amaze me. Thanks again for y...You guys continue to amaze me. Thanks again for your example of faith and grace! <BR/>And it's good to see that Noah is now fashionably fitting in with the rest of the "big glasses" gang.<BR/>praying!<BR/>Chris K.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-32529371.post-1161789612915638502006-10-25T09:20:00.000-06:002006-10-25T09:20:00.000-06:00your mother KNEW to pray that the hidden things wo...your mother KNEW to pray that the hidden things would be revealed! oh that is the gooood gooood news! (ALTHOUGH in my heart i'm seriously wanting to kick some butt WITH you!) ;) but thank You Lord for showing us how to pray - thank you for revealing what was hidden... thank you that YOU are able to heal ALL hidden things regarding noah's health!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-32529371.post-1161788629994188442006-10-25T09:03:00.000-06:002006-10-25T09:03:00.000-06:00Adrienne,Thanks for the posts. I'm glad to see No...Adrienne,<BR/><BR/>Thanks for the posts. <BR/><BR/>I'm glad to see Noah's getting out. He's definitely the rugged outdoors type... you just don't know it yet.<BR/><BR/>He's also very comfortable with his masculinity... considering those shades look more like Mom's style than his... I'm sure they served the purpose very well, though.<BR/><BR/>DavidAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-32529371.post-1161769989293035532006-10-25T03:53:00.000-06:002006-10-25T03:53:00.000-06:00Praying for Noah and your family daily/nightly.A s...Praying for Noah and your family daily/nightly.<BR/>A small group here at the International House of Prayer-Kansas City are joining with me during the Night Watch. <BR/>Love In Christ-<BR/>Sarah Stroer<BR/>(I met you at Chris & Terra's wedding. I sang in the wedding)<BR/>Blessings. . .Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-32529371.post-1161752266456312782006-10-24T22:57:00.000-06:002006-10-24T22:57:00.000-06:00GO!! DR. BRIAN!!!God bless you all. Praying for yo...GO!! DR. BRIAN!!!<BR/><BR/>God bless you all. Praying for you...and then praying some more...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-32529371.post-1161752126167750362006-10-24T22:55:00.000-06:002006-10-24T22:55:00.000-06:00I can't even imagine how frustrated you feel at ti...I can't even imagine how frustrated you feel at times, but its so obvious that God's grace is with you. I'm still praying!<BR/>Love,<BR/>StashAnonymousnoreply@blogger.com