So, not sure really who or how many are out there anymore, but in the next few days I have a couple favors to ask. The only way I can repay you is to thank you in advance for taking the time to read this, take action, and hopefully help make a healthy and lasting impression on other people's lives because you spoke up...
The first favor has to do with raising awareness for Lyme's Disease. As you may know from reading here, Noah's stool killed dozens of mice at the CDC but they never determined why. He had something infectious, but they used all his stool in the first round of testing, so never figured it out. Well, through further testing and blood work, we did find that Noah was born with the antigen for borrelia Burgdorferi, aka Lyme's Disease which was somehow given to him from me. I didn't realize it had been dormant in my body for years. Many people don't!
Continued research is being done regarding Lyme's, if it can transfer to a fetus during pregnancy, if it's presence in a small child, undetected, is the link to Autism through vaccinations and a slew of several other genetic disorders and diseases. The problem is, starting with the FDA and the CDC, not enough attention is being paid to this disease. So many people are being told it's just in their heads or have been given faulty clinical diagnoses for other things like MS, Lou Gehrig's, Rheumatoid arthritis, Chronic Fatigue Syndrome, Fibromyalgia, among other things. In some cases, OBVIOUSLY, those are the proper diagnoses, but in others, it's a misdiagnosis and it's the person and their family that miss out on the truth and on health.
So, yes, you know I don't watch Oprah anymore, not because I hate her, because I don't. Mostly it's b/c I rarely watch TV, but I know that is rare. We all know that in the media, if Oprah endorses or draws attention to something, it becomes a household name. Well, I am part of a Lyme Network. I receive emails, and as you all know, I still do research because I want to spare any other parent the journey I have travelled and continue to walk. Well, apparently there's a 'call' for topic interest on Oprah's web site and Dr. Oz is looking into bringing up Lyme's on the show. Below is the info. Would you please, please, PLEASE write in? You don't even have to have suffered from Lyme's but just writing in that you know of families who have been affected by it is so helpful. Believe me, I don't think that this is the only way to raise awareness, but it is a step forward.
Forwarded from Open Eye producer Kris Newby
Thanks to all of the people who wrote in to Oprah! We need to ask you another favor -- to write in again! Dr. Oz will be looking at this link!
Even if you wrote before, write again and ask Dr. Oz and Oprah to do a show on UNDER OUR SKIN and the controversy of chronic Lyme. Dr. Oz is interested but needs to see bigger response. Our last community page had 140-some comments. There were 150 people who wrote in to a recent question about toilet paper -- certainly we can get more people to write in about something as serious and life changing as Lyme disease.
Everyone spread the word! Write in and ask your friends to write in. Please - we don't have much time!
Click here to go to the link.
Believe me, I could write a dissertation about the effects of borrelia Burgdorferi on the human body. It is not just a little bug that attacks the body, like catching a cold. It's a stealth organism that attacks the cells of the body, can sit dormant for YEARS undetected, and when imbalance takes a toll on your body, it's activated to wreak havoc. It is not a respecter of persons and IT IS NOT LIMITED TO LYME, CT, or the Upper Northeast! People from every state in the union have tested positive for the antigen for Lyme. We all hate the word 'CANCER'. We all need to hate the word 'DISEASE', in general!
*You don't have to give your street address on the email link form above. If you'd like a suggestion as to what to say, shoot me an email at: email@example.com
Here's what I wrote, fyi:
Hello Dr. Oz. Apparently for the last several years I have had Lyme's Disease. I say 'apparently' because one, I didn't know I had it, and thus, didn't know it could sit dormant for years. I had symptoms over the last 20 years but never thought they were anything other than the average flu or strep infections. The only reason I was made aware of my condition was due to a 5.5 month stay in the hospital with my 7 wk old son, Noah. I took him in for chronic diarrhea but he was admitted for nystagmus testing. Then, his stool killed dozens of mice at the CDC (sent in for botulism, as a precaution for his hypotonia). To make a very, very long story short, after one and a half months, the ICU physicians, neurologists and geneticists were at a loss for diagnosis. They clinically wanted to call it a leukodystrophy, but couldn't because of normal lab test results, including DNA sequencing, and the infectious stool at the CDC, which was inconclusive. Finally, we sent our own samples to reputable labs for testing through outside doctors. Noah's blood and mine both showed the antigen for borrelia Burgdorferi, but not the antibodies. There are so many schools of thought on how Bb is transmitted. I don't really care about that. There will always be politics in medicine. My concern as a mother of a deceased child (we ultimately had to remove Noah from life support after 5.5 months w/o answers) and as a woman considering pregnancy in a later stage of life now, though Lyme free, is the lack of attention the FDA and CDC pays to this devastating disease. My question for you is why is Lyme's so 'hush hush'? There are many speculations, including some research, regarding Bb's link to many other horrible conditions. Are you willing to raise awareness, to think outside the box, and to educate the many millions of people who watch Oprah daily about the truth about Lyme and how it silently affects thousands, if not more, of people everyday? I appreciate your time.
The other favor is about the book. I'll ask later this week...Thanks, you guys!