I want to learn, live, and love with intention, finding beauty and thankfulness in each day. Intention with God, family, myself, and everyone else on this journey.
Wednesday, August 16, 2006
Two Weeks
Well, we have been at TCH for two weeks now. Noah is in serious but stable condition. We continue to wait and wait and wait for test results. Thanks for your patience as we wait patiently here. We'll keep you posted as we know anything. They have been on the phones checking on the status of the tests, which is a good thing. Due to the extent of testing, some are being sent to the Mayo, Johns Hopkins, Atlanta, etc.
Tomorrow we'll be having a big meeting at 3pm CMT with all the doctors and a social worker. Since many of the doctors are in different camps, they haven't been communicating, so it will be a good time for everyone to get on the same page and to hear Jason's and my heart about our son.
Two years ago I did a study on Proverbs. It's all about raising a son, so, since I have a little bit of time, I'm jumping back into it. I'll share deep thoughts as they come to me, whether you want to read them or not, ahem.
I am also doing my own research on the side and stirring the waters for the doctors. I am making them think outside the traditional box. The problem is, all the routine tests keep coming back "normal." Without a diagnosis, they won't treat Noah, so we are just maintaining, but not being very proactive.
Noah's pediatricians are putting together a homeopathic remedy that is an overall support tincture for his little body. I've made the docs aware that we'd be pulling in the natural side of medicine. Also, I've challenged the attending physician to find a D.O. that hasn't totally crossed over to the allopathic side of medicine and have him come take a look at Noah. I've also been given the name of a specialist in L.A. that is a mold toxicologist. We've emailed him and hope to hear from him soon, as mold toxicity is one of the avenues I am on right now. Please pray that if it is down this road, God will reveal it and have a cure for our son.
Ade xoxox
Labels:
hospital life,
Noah's Story,
PICU,
Raising Boys
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Hey Jason and Adrienne. This is Amy, Terra and Tonja's friend.Just wanted to say I have always admired you both as people and as parents. my husband Jeremy and I think and pray for each of you daily. Noah is absoutly beautiful, just like Emily.
ReplyDeleteAdrienne,
ReplyDeleteGod bless you, girl. Your strength and unwavering trust in God is truly inspiring.
When I'm praying for you, Jason, Emily and our angel, Noah, I often meditate on this Bible verse.
James 1:2-4
Whenever trouble comes your way, let it be an opportunity for joy. For when your faith is tested, your endurance has a chance to grow. So let it grow, for when your endurance is fully developed, you will be strong in character and ready for anything.
I hope you will find a sense of peace, hope and comfort from it as well.
God loves you and your family SO MUCH and so do I!
In Christ's love,
Amy Marolf
xoxo
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