So...today our meeting with Dr. Brian was, well, it was...

Basically the MRI shows a decrease in volume in Noah's brain, meaning, it's shrinking. Now, the only way to know if it's actually shrinking because it's atrophying or because actual brain cells are dying is through a brain biopsy or another spinal tap. Neither of these does he wish to do with Noah because he said it wouldn't change the prognosis which is, in 2006, there is nothing they can do for Noah regarding his inability to process or metabolize something at the cellular level. This is building up as a toxin to him in his body. God told me the first day Noah had diarrhea at home that "there's something Noah can't process that's becoming like a toxin to him and as soon as we figure it out, he'll flourish". When I told the doc this, he couldn't believe how specific it was...the same process, but they just can't do anything for him.

Well, at this point the doc wanted to know what he could do for us. We told him that we wanted to treat Noah with alternative methods and didn't want any red tape. We also told him that if we were at home, we'd be doing whatever we wanted to treat him without "asking permission" of people that aren't his parents...He said he'd do what he can to get us home sooner than later and that he also wants us to write a list of the treatments we want to do with Noah so he can tell the "team" our wishes. Of course, Risk Management always jumps in at this because they have to cover themselves from lawsuits, to which I explained we aren't suing anyone, though ample mistakes and NON-communication have transpired, but that to waste our life's time suing people was not in our interest. We have two kids to raise and a whole world to reach, sitting in court rooms is of NO interest to us!

Anyway, thank you all for your continued prayers and encouragement. We wait on God and have always trusted in Him. Today's meeting was nothing new in regards to them not knowing what is wrong with Noah and not being able to do anything for him. It's a more specific answer of not knowing anything, if that makes sense, but the reality is, on this day in October 2006, there aren't enough geniuses in the world who can do anything for Noah. I have a theory, but I've never been known to be a genius...I'll let you in on it at another time...

Also, anyone wanting to come pray for Noah, you can come anytime, but on October 31st, (which is the night Jason and I met 16 years ago after a prayer meeting), all day we'd love for people to be praying throughout the day. Feel free to pray from wherever you are or to drop by. Lots of people were wanting a "prayer time" scheduled and we thought what better day than the day I met the man of my dreams!

Until tomorrow...