Friday, October 27, 2006

So...today our meeting with Dr. Brian was, well, it was...

Basically the MRI shows a decrease in volume in Noah's brain, meaning, it's shrinking. Now, the only way to know if it's actually shrinking because it's atrophying or because actual brain cells are dying is through a brain biopsy or another spinal tap. Neither of these does he wish to do with Noah because he said it wouldn't change the prognosis which is, in 2006, there is nothing they can do for Noah regarding his inability to process or metabolize something at the cellular level. This is building up as a toxin to him in his body. God told me the first day Noah had diarrhea at home that "there's something Noah can't process that's becoming like a toxin to him and as soon as we figure it out, he'll flourish". When I told the doc this, he couldn't believe how specific it was...the same process, but they just can't do anything for him.

Well, at this point the doc wanted to know what he could do for us. We told him that we wanted to treat Noah with alternative methods and didn't want any red tape. We also told him that if we were at home, we'd be doing whatever we wanted to treat him without "asking permission" of people that aren't his parents...He said he'd do what he can to get us home sooner than later and that he also wants us to write a list of the treatments we want to do with Noah so he can tell the "team" our wishes. Of course, Risk Management always jumps in at this because they have to cover themselves from lawsuits, to which I explained we aren't suing anyone, though ample mistakes and NON-communication have transpired, but that to waste our life's time suing people was not in our interest. We have two kids to raise and a whole world to reach, sitting in court rooms is of NO interest to us!

Anyway, thank you all for your continued prayers and encouragement. We wait on God and have always trusted in Him. Today's meeting was nothing new in regards to them not knowing what is wrong with Noah and not being able to do anything for him. It's a more specific answer of not knowing anything, if that makes sense, but the reality is, on this day in October 2006, there aren't enough geniuses in the world who can do anything for Noah. I have a theory, but I've never been known to be a genius...I'll let you in on it at another time...

Also, anyone wanting to come pray for Noah, you can come anytime, but on October 31st, (which is the night Jason and I met 16 years ago after a prayer meeting), all day we'd love for people to be praying throughout the day. Feel free to pray from wherever you are or to drop by. Lots of people were wanting a "prayer time" scheduled and we thought what better day than the day I met the man of my dreams!

Until tomorrow...

15 comments:

  1. Heidi Jo10:33 PM

    Father, once again we beg you to bring the hidden things to life. Please show the way. Amen.

    Have they tested him for Celiac's disease which is essentially gluten intollerance? A family who lives here has a daughter with this - first time I'd heard of it - one of the first signs was ongoing diarrhea... basically with ANY gluten (even trace amts) in her diet she could not process her food and begin to flush out even the nutrients in other foods. I know they've tested him for nearly everything imaginable... but I thought at least I'd mention it "just in case."

    Praying with you.
    Heidi Jo

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  2. Carrie2:03 AM

    Just wanted to let you know that I'm praying for you. I think of you often and say a prayer every time you come to mind.

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  3. Anonymous2:44 AM

    You are right, there is no genius in THIS world who can help Noah, but there is someone much bigger than this world who can. Thank you so much for sharing your heart and for being REAL. I think presently that is one of the things I miss most about home, is people who are REAL. Though I did think once I finally came to the mission field that would be true here as well, boy was I wrong. Though I know some kids who are real. I want you to know that the 4th Grade Class here in Seoul prays for Noah daily. You all are the first thing on their hearts and in their prayers every day. They keep telling me that they pray for you at night as well. They loved Noah with the sunglasses. We will definitely join you in prayer on October 31. My class hopes I get the opportunity to meet Noah when I am home next summer. They also believe that God still does miracles, they say He could feed a million today with only 1 loaf of bread, and they believe God will take care of Noah. You are in our thoughts and prayers continuously.
    God's Blessings to you. Miss Morton and the amazing 4th Grade I have been blessed to teach.

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  4. We will be fasting and praying for Noah on Oct. 31st.
    God Blessings,
    Robb and Teresa

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  5. We are continuing to pray with you. Big hugs to all of you!
    Laura

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  6. You don't know me, but Heidi shared your story on a message board. I'm praying SO hard for your little one and for your whole family. May the Lord bless you and keep you and make his face to shine upon you and give you peace. I'll be praying, especially on the 31st. As a matter of fact, I'll be fasting on the 31st, and I hope others will join me.

    Dear Father God, Thank you SO much for preserving baby Noah's life thus far. Please continue to do so. Be merciful Father, let him live a normal healthy life. Please heal him quickly. Please help this family. I can't imagine what they are feeling right now. Be merciful and gracious, Father. Please heal this baby. In your precious son's name, amen.

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  7. David5:08 PM

    Adrienne,

    The prayers will definitely keep coming... through 10/31 and beyond.

    David

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  8. I heard about your precious son from my friend Jordan and wanted you to know I'm praying for your family.

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  9. My prayers are also with Noah. I will be at TCH for my friend on the 31st and I will pray fervently for Noah and for you and your family.

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  10. Anonymous6:21 AM

    praying

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  11. Anonymous7:05 AM

    Graves Fam!
    Hello, sorry it has been so long since my last post... I read them everyday but often find that my words are not enough! I would like to get down there with lunch again, any day work for you? You all are in our prayers and our conversations! Talk to you soon! Wendy

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  12. Noah, you are a warrior for God's army in that little hospital bed in Colorado and God will use you for his glory. Thank you Lord for brave lil Noah and his beautiful family.

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  13. Anonymous9:12 PM

    My ladies group and I have been praying for you and your family. One of the women in the group wanted me to give you the name and number of a wonderful MD in our area. Her name is Dr.Quinlin and she specializes in alternative medicine and she is a strong Christian. I can personally say she is amazing. Her office is located in Canal Winchester Ohio and her number is 614-833-1500.
    I hope this helps.
    P.S.Thank you for sharing your faith and your family. You all are TRUILY an inspiration. Thank you!

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  14. Anonymous7:36 AM

    My heart and prayers are with you all.
    -Annalisa

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