Tuesday, October 10, 2006

Today is Noah's 4 month birthday! He got one dollar from "Grampa Cloy" the respiratory therapist. We're heading down to fluoroscopy for his new NJ tube right now...we just got back upstairs to Noah's room. I rode in his bed on the way up and "bagged" him while the nurse and Cloy tried not to run into walls with the SLIGHT weight change in the bed...Noah has his new NJ tube in. The reason they aren't using the Gtube right now is because of his hypotonia, they are concerned that the sphincter at the top of his stomach is also floppy, therefore increasing the risk for aspiration. (I feel like I'm repeating myself, so I apologize if I already wrote this...)

Anyway, for Noah's birthday, he and I read Psalm 119. It's a great one! I'd like to memorize it but it's hard for me to memorize things without a tune...maybe Bono could come up with one?

We'll likely have a care conference soon with all the docs and anyone we want involved. They all want the results to the tests we sent out on our own accord. I find that interesting since they didn't want to involve our insurance to send out those tests...Jason and I will share the results of the tests with the different docs here, but if you'd pray for us in that process, it would be great. There are a lot of principles here that deep down I am trying to reconcile...Oh, I am a tortured soul, trying to live by the Spirit but not be so spiritual that I am no earthly good...anyway, we'll keep you abreast on the care conference.

7 comments:

  1. Anonymous6:32 PM

    Bless you Adrianne. that last comment in today's post is an interesting concept. You have been and "earthly good" to so many and will continue to be. I want you to know that Danny and I pray for Noah every night. Val

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  2. Anonymous8:08 PM

    I have been following your site since it was sent by a friend of yours and have had many nights I have prayed for your little boy. We have an 8 month old that I thank the Lord for every night. Even when it's 3am. Just wondering if you have tested your house or any place you have lived for molds. They can affect everyone differently and can be toxic to children and infants. Just an idea.

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  3. Anonymous7:17 AM

    I'm praying daily for your little guy, as I know so many are. But I still wanted you to know.

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  4. Anonymous5:52 PM

    HAPPY "BIRTHDAY" NOAH!!

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  5. Anonymous7:19 PM

    Happy Birthday!
    Chris

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  6. Anonymous8:49 PM

    Dearest Family, Bobby & I are so happy to be coming back to Denver to be with you again. Grandma's funeral was beautiful....she was a "wife of noble character", Prov. 31....I know that she prayed many prayers for her loved ones....God will answer them all, because He is faithful. We keep praying day & night...today I prayed Ps.71 for Noah....and Deut.29:29 "The things that are hidden belong to God, but the things that are revealed belong to us and to our children..." Lord, please reveal the things in Noah that are making him sick, and please heal him and make him whole. Thank You, Jesus! Love, Bobby & Bebe xoxoxo

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  7. Happy birthday to you,happy birthday to you, habby birthday sweet Noah,happy birthday to you!!

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