Today is Noah's 4 month birthday! He got one dollar from "Grampa Cloy" the respiratory therapist. We're heading down to fluoroscopy for his new NJ tube right now...we just got back upstairs to Noah's room. I rode in his bed on the way up and "bagged" him while the nurse and Cloy tried not to run into walls with the SLIGHT weight change in the bed...Noah has his new NJ tube in. The reason they aren't using the Gtube right now is because of his hypotonia, they are concerned that the sphincter at the top of his stomach is also floppy, therefore increasing the risk for aspiration. (I feel like I'm repeating myself, so I apologize if I already wrote this...)
Anyway, for Noah's birthday, he and I read Psalm 119. It's a great one! I'd like to memorize it but it's hard for me to memorize things without a tune...maybe Bono could come up with one?
We'll likely have a care conference soon with all the docs and anyone we want involved. They all want the results to the tests we sent out on our own accord. I find that interesting since they didn't want to involve our insurance to send out those tests...Jason and I will share the results of the tests with the different docs here, but if you'd pray for us in that process, it would be great. There are a lot of principles here that deep down I am trying to reconcile...Oh, I am a tortured soul, trying to live by the Spirit but not be so spiritual that I am no earthly good...anyway, we'll keep you abreast on the care conference.