I want to learn, live, and love with intention, finding beauty and thankfulness in each day. Intention with God, family, myself, and everyone else on this journey.
Monday, November 27, 2006
Dear Lord, it's me, Noah...I'm joining with everyone else who is praying for me...please send a miracle. Thanks!
This morning I found Noah's hands folded neatly around his bunny in the "praying" position. His nurse is pretty cute! This, though, set the tone for the day as we had a good time of prayer as a family before everyone headed out of town. It was great to have everyone here, to feel the support physically, emotionally, spiritually and to be reminded that Noah isn't only our son and Em's brother, but he's somebody's grandson, nephew, cousin, great-grandson...
We had a sort of "preliminary" meeting with a doctor this evening who specializes in bone marrow transplants, different than umbilical, but somewhat in that field, who will likely be at the meeting. We weren't discouraged, though we certainly weren't encouraged...this is such a controversial topic, it is so new in research and experimentation, there are so many politics the more you look into this topic and the reality is, not a lot of doctors or the FDA are interested in being the first in the USA to try this on a child without a concrete diagnosis...I'm pretty sure when Peter stepped out of the boat, he knew that he wasn't going to be walking on a concrete sidewalk, he was fully aware that his surroundings were water and he was activating his faith...
God knows what is supposed to come of the meeting at 1pm tomorrow in Tammen Hall in the Founders Room on the second floor. One thing I do know is we have all of your support and prayers. Thank you all for your continued strength! You guys ROCK! Going to bed early for the big meeting...good night, and may God richly bless you beyond your wildest imagination!
(Tammen Hall is the original historic building of the hospital, so not in the main entrance but across the round-about from the main entrance. The Founders Room is on the second floor. Take a left off the elevators.)
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ReplyDeleteOur whole family is sending prayers for your whole family. God never told us to sit back and let Him take over. He said, "Be active with Jesus in your hearts, minds, and souls, and He will lead you. It sounds like you are doing just that. May His peace, comfort, joy, and happiness be with you always.
ReplyDeleteLove,
Ryan & Ellen and the kids, Jacob, Christian, Emma, and Grace Berends
Adrienne,
ReplyDeleteI've set a reminder on my computer at work so I don't "miss out" on your meeting today. I'd love to run over for it, but can't pull away from the office. Just know that I'll be praying for you during that time.
Much prayers,
Audrey
What a sweet picture. Praying here too.
ReplyDeleteWendy in IA
Praying for all of you... and doc's.
ReplyDeleteDavid
I can't stop praying. We are standing with you guys all the way.
ReplyDeleteLove you,
Chris and Terra
Praying for you all this day! Believing and expecting God's mighty hand to move on behalf of Noah! Prayers are lifted up for this important meeting! Love you!
ReplyDeletePraying for you! God rocks, we rock, and you ROCK. :) Noah's life is a blessing!
ReplyDeleteLord, thank you for Jason and the commitment he has to his family. Thank you for his example of You, Father! Bless him with wisdom and words as he stands before the committee today.
Move in that room, God. We know you can!
Love you guys!
chris
What a sweet picture...made me tear up as read your post. I have never met your little sweetheart but I can't help but want to cuddle up with him too. He is a special boy with a whole lot of life to live!
ReplyDeleteWe are praying with you for tomorrow's meeting. May you be at peace!
1pm Mountain time:
ReplyDeleteDear God,
Please be with all who are meeting in regards to Noah's care. Please guide the process and give wisdom as only You can. Please give Adrienne and Jason peace during this time. Touch Noah, God, please touch him...
We have kept Noah's picture up on our computer all day and have been praying for him and you all. PRAISE JESUS!!
ReplyDeletePhilippians 4:6-7, Jeremiah 29:11, Deuteronomy 31:6, and Psalm 106:1
Miss Morton's 4th Grade Class
Centennial Christan School
Seoul, South Korea
It's 9:00 pm here in Arizona. I'm waiting to read your next blog to see how the meeting went. It's amazing to think about how many people around the world are praying for Noah. When I think about that I think about all these hands linked hand in hand in unity lifting up baby Noah. Be still and wait upon the lord. He'll speak through the right people.
ReplyDeleteLove, angie
I am as well anxiously awaiting to here how the meeting went today. It was my first thought upon waking up.
ReplyDelete