Our handsome guy...
Leaving for four days was good because I was able to see improvement. Noah's skin is terrific! I'd say there's a 97% improvement! No more crusty, red, oozy, or dry cracky stuff! It's truly amazing!

As far as his care goes, we are giving him supplements that include food at the cellular level, natural supplements, herbs that help kill the bacteria, anti-fungal meds, and soluble fiber from my friend that encapsulates fat where toxins are stored and takes it out of the body. He is being sponsored by a local non-profit that supplies nutrients to medically fragile children. We are going to a testimony night on Friday the 10th at the Convention Center to hear more about it, if anyone is interested.

The hospital is doing its part trying to get things rolling regarding home care and equipment. We'll be applying for Medicare and Medicaid which speeds the process along. We have insurance, but it runs out next November, so government assistance is crucial.

We are increasing Noah's antifungal tomorrow. He's got some thrush on his tongue, so that increase should help. Some of you have asked about NALD, but Noah tested negative for that particular leukodystrophy...that is what keeps the docs on their toes...everything they have thought it was, it wasn't...that's why our own theories seem to hold more and more weight...

More updates tomorrow, but now, it's family time. Have a wonderful new week with family, friends, co-workers, neighbors, and strangers. Ask God how He wants to use you this week and let go and watch Him work!