Tonight, while I was holding Noah, he made a huge pouty cry face and held it for a good 10 seconds! The nurse saw it and couldn't believe it. It looked like he was crying...and though I'm sad that he was sad, it was a good facial expression because he hasn't made them in a long time.

Anyway, I need to retract my statement about Eve...On the way home last night I actually found myself feeling sorry for her. I realized that she and Adam were the first parents on earth to lose a child, and though Noah is still with us, the pain is there and I can somewhat understand. Imagine the utter pain of leaving God's physical presence where life was bliss, learning how to live on your own, starting a family, falling in love with two boys, and then one goes and kills the other. No, I won't give her an earful because she's been getting that for thousands of years, I suspect, or at least threats of it. Maybe I'll even give her a hug...

Anyway, Jason's been contacting doctors at the Mayo, Kennedy Krieger at Johns Hopkins, Duke, and the University of Minnesota to start for further opinions and direction for testing. Some insight has been sent back and so we'll run some more tests this upcoming week. We are searching in lysosomal storage disorders, and peroxisomal and mitochondrial disorders, just for a start. These are all cellular disfunctions. We know he doesn't have many of these, but we don't know if every one has been screened.

Today Em and I decorated her Christmas tree and the house a little. We're going to get Noah his own little tree for room 313 so he can experience the holiday cheer. Obviously a tree isn't the meaning of Christmas, we'll tell him what it's all about, but it's his first Christmas and we want it to be extra special. I only want one thing for Christmas this year...