Holy Smokes, what a day!
It's late, so I'll make this as short as possible for my own sanity...Noah's PIC line had a bacteria, so they pulled that out today. I found out that in the NICU, when an infant has a PIC line put in, the protocol is a routine dose of Nystatin, an anti-fungal, until the PIC line is pulled out. Noah has had a PIC line in for 7 weeks...last night was the first time he was given Nystatin (You do the math).
Because they pulled the PIC line, they had to put in an IV line somewhere else. After poking his right wrist, right foot, left wrist, and left foot, there is now a line in his HEAD. NICU came to put it in because babies have great veins in their heads.
Risk Management got involved in Noah's case today...just because we want stool, urine, and 3ml of his blood for our own tests, with a reputable lab. I won't go into details because my heart is not to get everyone else worked up, but just to inform so everyone knows how to pray...
We had a good talk with our favorite Attending today, expressing our feelings, concerns, opinions, and sentiments. Sorry, again, no details, just know that your prayers are coveted for Noah.
You may all be tired of living vicariously in the PICU for 8 weeks now, especially being frustrated not having answers and knowing that the docs here aren't searching for any more. Please don't grow weary in well doing. Keep praying. Jason and I do not feel like 8 weeks is anything in the scope of life on earth and have not felt released in anyway from this scenario. Thank you for walking this journey with us and bearing this load. We could not do this without all of you, wherever you are!
Today I was feeling strongly for men to be praying for Noah. My dear friend who brought dinner to us tonight told me that her husband has been praying for Noah since he was in my womb and that he prays for Noah every day. I have never even met her husband! It was so encouraging to know that what I was feeling in my heart, God was already laying on the hearts of praying men.
Okay, bed time. I'll check in tomorrow. Have a blessed night! Peace!