Noah is out of surgery and sleeping now in his room. He's doing good. We still can't hear him cry because of swelling from normal surgery. He's been "fasting" all day because he needed an empty stomach for the g-tube. His face is swollen from all the adhesives...they tape their eyes shut so their corneas don't dry out during procedures...well, Noah is sensitive to adhesives, so he's extra pink and extra puffy right now. *Parental creative suggestion: place cotton balls over eyelids prior to tape placement!!!
Since he grew over the last month while "tubed" his cheeks grew on either side of the tape, so there's a horizontal dent under his nose from cheek to cheek! It just takes a little time for the swelling to go down.
The docs took a muscle biopsy and sent it to pathology right away. The metabolic geneticist will meet with us on Monday after he reviews any findings from the skin and muscle biopsies. Also, the audiologist came in while Noah was still sedated and did her testing. She'll review that and get back to us next week.
I'm going home to have a slumber party with Em and the boys will hang here tonight. THANK YOU ALL FOR YOUR PRAYERS AND SUPPORT! God is good!
Praises for sleeping babies!!
ReplyDeleteChris K.
Hi Adrienne & Jason,
ReplyDeleteI've just caught upon the past few days of your blog. Thank you for the updates on your precious Noah (and yourselves). It really does help to be able to focus our prayers for y'all.
I think of & pray for y'all so often. May God continue to show himself true to you in many different ways.
Love
ashley thomas
YOU ARE BRAVE.IT IS DIFFICULT TO PUT ON A BRAVE FACE FOR OUR CHILDREN WHEN THEY ARE SUFFERING SO.THE LITTLE SOLDIER HAS ALREADY TOUCHED SO MANY LIVES BY REMINDING US OUR DAILY STRUGGLES ARE MINUTE BY COMPARISON.YOU ARE IN OUR HEARTS.
ReplyDeleteLYNETTE'S T-TOWN FRIENDS
You are in our prayers, daily.
ReplyDeleteRemember, you are all "precious in His sight".
Val&Doug
We love you guys and we are still praying! Glad that surgery went good! Please call if you need anything!
ReplyDeleteLove, Ry Amanda Isaac and Brenna
I don't know if this means anything but I really felt prompted to share. I know that the docs have been very frustrating for you guys! I was praying for Noah a little bit ago, asking God to help me know how to pray and what to ask Him for, wanting to ask for a miracle straight from Him but feeling like the miracle I was supposed to be praying for was a medical one. I don't know if for your regular docs to find or your ND. And somehow feeling that there is at least one person in particular who God is drawing near through a medical "discovery" so to speak.
ReplyDeleteThat might be completely insane. If it doesn't check with you, forget I ever said it. But know that Noah and the rest of you have been on my mind daily. You are being a tremendous influence all over the world.
Love and prayers!
Chris K.
hey you super awsome Grave's fam- just got back into the country and I was happy to read that Noah had a good surg! Unhappy to see that he has picked up some bugs along the way in his stay in the ICU. I will come visit when I get back to work. Love you!!! Nurse Sara.
ReplyDeleteWe continue to pray for Noah, and you, his family! Jesus already paid the price and Noah has the victory!
ReplyDeleteLove in Christ,
Michelle and Ron Smith
Missionaries in Bulgaria
We continue to pray for Noah and you, his family. Jesus already paid the price and Noah has the victory, in Jesus name.
ReplyDeleteLove and prayers,
Michelle and Ron Smith
Missionaries in Bulgaria
Hey guys me and john paul are still praying for your family and especially for Noah!! Gladto hear the surgery went well! I will keep praying for you daily, if you need anything please do not hesitate to call! Love you guys!!
ReplyDeleteAMBER, JOHN PAUL, AND KIANNA
I found you blog one day when I was just surfing the web. I just wanted you to know that I'm praying your family and your little boy. I hope and pray that you can find out what is up and it can be fixed or at least help other kids from getting it. I pray God's peace be with you all for this next week. I just hate to see or hear about kids going thru stuff like this. I hope it all turns out the best for everyone.
ReplyDeleteNichole
I know his eyes are red and he has a dent on his face, but I'm ready for a new picture of that handsome guy!
ReplyDeleteLove you.
It seems so insignificant to offer that God is touching my life as you tell Noah's story. Thank you for your faithfulness and sturdy perspective -- I keep praying that God will honor these faithful commitments you and your family have made. I/we all entrust Noah to God's healing care, and pray for the BEST outcome. Shalom.
ReplyDeleteJust to throw something out that you probably know, breast-fed babies almost never have formed stools,that's just one of the benefits of breast milk. So are you sure it was clinical diarrhea or just typical breast milk stools?
ReplyDeleteAdrienne,
ReplyDeleteOur little Adelle...2.8 years old insists every night on praying for "Lukey's (0.5 years old) friend baby Noah". Know that you guys are constantly in Jim and I's prayers as well.
Jen Stumbo(Gray)
Hi Adrienne & Jason. I am a friend of your Aunt Diane's. I live in New York. I just recently had a baby Boy ((he is 9 months) I am so pleased that your Noah (beautiful name) is out of surgery and seems to be sleeping peacefully. Our prayers are with you all.
ReplyDeleteGod Bless!!
Love,
Jeri, Mike and Andrew Soldner
Oh I am so relieved, God is so good. Your little boy is so beautiful that it almost hurts to look at him. I will continue to pray for you and yours!!!P.S. I am a new Blogger and I don't know how to post my e-mail on it yet. We have never met, I found your Blog through a friend of mine. So that's how this wacky web works,touching lives that would otherwise go un-touched,kinda like our wonderful God huh?
ReplyDelete